IMPORTANT LINKS- ALPHABETICALLY


Click on photo to enlarge

CAMPING (my father’s)Mayne Island Camping

http://www.mayneisle.com/camp/

CLINICAL TRIALS

http://www.projectcuresma.org/

http://www.nih.gov

http://www.chu-sainte-justine.org

DOCTORS LINKS

http://www.doctorbach.com/

John R. Bach M.D.
Professor of NeurosciencesDepartment:
Physical Medicine and RehabilitationDivision:
Physical Medicine & Rehabilitation

Practice Phone:
Voice: 973-972-2802
Fax: 973-972-2825

Email: [email protected]

Practice Address: 90 Bergen Street
DOC 3100
Newark NJ 07103 (Essex)
Hospital Affiliations: UMDNJ – University Hospital, Newark

Below is a link to Healthcare professionals from throughout the US, Canada and the world that have been trained by Dr. Bach and the Center For Ventilator Management Alternatives in the use of noninvasive ventilation techniques.

www.theuniversityhospital.com/ventilation/html/contactus/resources.htm

Dr. Mary K Schroth

Associate Professor

University of Wisconsin at Madison

\Hospital-

Clinical Science Centre

Office Suite K4/942

Office Phone:               (608) 263-8555

Email: [email protected]

Kathryn J. Swoboda, MD

Kathryn  Swoboda

http://medicine.utah.edu/neurology/research/swoboda/

Associate Professor, Neurology and Pediatrics Diplomate, American Board of Medical Genetics Director, Pediatric Motor Disorders Research Program University of Utah School of Medicine 50 N. Medical Drive, Rm 3R210 Salt Lake City, Utah 84132, USA

Telephone:               801-585-1676        Fax: 801-587-9346 Email: [email protected]

FRIENDS OF SHIRA’S LINKS

http://www.caringbridge.org/md/callie/

http://www.our-sma-angels.com/grace

http://www.our-sma-agels.com/Charlie

http://www.our-sma-angels.com/ethan

http://www.maloriefox.com/

http://www.our-sma-angels.com/jenna

http://www.our-sma-angels.com/lily/

http://www.hopeforemily.com/

http://www.allrloveforsky.blogspot.com/

http://www.our-sma-angels.com/elizabeth/

http://www.caringbridge.org/visit/daniel_lee

http://www.our-sma-angels.com/Skylar

http://www.our-sma-angels.com/b4sma

INSPIRATION

http://www.cbc.ca/lifeandtimes/callwood.html

http://www.teamhoyt.com/

MUSIC THERAPY

http://www.victoriamusictherapy.com

SHIRA’S VIDEOS

http://www.youtube.com/Shira2

SPINAL MUSCULAR ATROPHY SITES

http://medicine.utah.edu/neurology/research/swoboda/

http://www.doctorbach.com

http://www.smasupport.com/

http://www.fsma.org/canada

http://www.fightsma.org/

http://www.projectcuresma.org/

http://www.mda.org/disease/sma1.html#special

http://www.smaspace.com